The meaning of adventure… “an unusual and exciting, typically hazardous, experience or activity.” Life is an adventure. Carson’s life was just that, an adventure. Unusual? Yes, too many of us who have never experienced the intrusion of cancer it’s not normal. However, to other like Carson, cancer was a reality. It was “hazardous” on many levels. But Carson, surrounded by great people and a world-class organization, decided not to allow his circumstances to define him. He moved forward with his purpose in life. Carson shined and others around him took notice. His adventure was injecting light into the world. He is an example of someone who, in spite of his challenges, was bold, strong, noble and courageous for good in the world. Carson was a source of light into otherwise dark places. He was an inspiration for all of us to live out our purpose in life. Carson’s story is best told by his amazing mom and dad, Debbie and John…

Carson Gene Higgins was born on January 2, 2004. Carson went to be with his Savior on August 11, 2016, following a nine-year battle with neuroblastoma, a rare childhood cancer of the nervous system. His final days were spent surrounded by his parents and brothers, as they journeyed around the country on Carson’s “Trip of a Lifetime.” Carson went to Heaven in Las Vegas, as the family prepared to see the Hoover Dam and the Grand Canyon. Carson got to see some of God’s beautiful creations in the loving company of his family-it is four weeks of memories that they will cherish for the rest of their lives.

Although Carson was only twelve years old at his passing, his short life had more impact than most, regardless of years on this earth. He demonstrated incredible courage as he battled his disease, but never once complained, despite years of difficult and taxing treatments. Carson always gave of himself, and never asked for anything in return. He never lost his sense of humor, or his kindness, gentleness, and loving demeanor, no matter how sick he was, he was truly God’s angel here on earth.

Carson’s greatest passion was reading; he would read three or more books per week. The family was blessed to have been able to donate Carson’s corneas, a gift they knew Carson would want to give, so that others could have the gift of sight, and hopefully, love to read as much as he did. Additionally, Carson loved being a member of the Boy Scouts, and specifically Troop 385. He enjoyed the comradery of the Troop, and always looked forward to meetings and campouts. Carson also enjoyed the fellowship of his Youth group and getting closer to his God with them. Carson grew in confidence and stature every week while horseback riding at Victory Gallop – he loved the horses!

The family hopes other will be as touched as they were by Carson’s life. He taught them how to love, to be gentle and kind and how to face adversity with peace and grace, to be strong and courageous, and to live by example, not by words. His presence will be missed, but his spirit and the memories of him will live in our hears forever. We learned from Carson that every day is a gift, a treasure, not to be taken for granted, and to live every day as your last, so as to have no regrets.

The greatest blessing, we received was experiencing Carson’s divine peace and strength as he courageously battled cancer. It strengthened us, and at times sustained us, to hear the stories of how Carson’s journey inspired others and brought so many closer to God. We will forever be blessed and thankful to so many for the incredible outpouring of love and kindness Carson and our family have received.




  • CaringBridge: Carson Higgins

  • YouTube: Carson’s Story of Hope, Faith and Love

  • St Jude Carson Pkg (YouTube)

  • Carson Higgins St Jude Harlem Shake (YouTube)

  • St. Jude Children’s Research Hospital: October 2008 Patient Of The Month

  • 10 Kids Who Had Near-Death Experiences

  • Northeast Ohio Parent: Surviving a Difficult Journey Together

  • Fox 8 News: The brave faces behind the St. Jude campaign

  • Carson Higgins St Jude Harlem Shake (YouTube)

  • Fox News Insider: How Angels Helped Little Boy Beat Stage 4 Cancer